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Teaching families to fish: How to support families as care coordinators

July 30, 2013

What would care coordination look like if families received support and training for their role as principal care coordinators for their child with special health care needs? A new issue brief from the Lucile Packard Foundation for Children’s Health proposes a series of attributes that would characterize true family-centered care coordination. Wonderful affirmation of the importance of families as care coordinators!

From the Issue Brief: 

  • To rephrase the old aphorism about fishing, if you coordinate care for a family, things may go well for a while; if you teach a family how to coordinate care, things can go well for a lifetime. If we truly want care coordination services to be family-centered, we must teach families, and, as they mature, their children, the skills to successfully serve as principal care coordinators over the life course, and provide tools to support them in this role. 
  • Download the Issue Brief here.
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