A team of researchers at the University of Maryland have been conducting research for over 15 years with caregivers of children who have a mental health condition. Through this work they have come to understand the needs and concerns of caregivers when faced with the decision to use a psychotropic medication for their child. A better understanding of how caregivers prioritize the benefits and risks of psychotropic medication and what outcomes they most desire for their children has been the factors motivating this research. The current study, called the PIONEER Study (Caregiver PrIoritzing Outcomes, Needs, ExpEctations and Recovery), is being conducted in collaboration with family caregivers, who have helped to inform the research questions and to identify the key concerns in managing the care of a child with mental health needs. This research gives families a voice in expressing what matters most to them when it comes to weighing the benefits and risks of the different demands in the care management of their child and when it comes to prioritizing the outcomes that are most important to them and their child.
- Download the information flyer and share with your family organization!
What is the Caregiver PIONEER Study?
- The study hopes to give adults the facts they need to make the best health care choices for their child.
Who can join the study?
- Parent or Primary Caregiver of a child who:
- is age 21 or younger
- has a developmental disability
- has an emotional or behavior problem
How will this help families like you?
- You will help other families make the best health care choices for their child.
What you will be asked to do if you join the study?
- Complete an online survey that will take 40-50 minutes.
Our promise to you:
- We will always respect your privacy.
- We will never use your or your child’s name in anything we collect or in any papers or flyers we share.
- We will provide you with feedback from the study
- You will get a $50 gift card for being in this study
You can access the survey here:
- Please contact the Project Coordinator:
UNIVERSITY OF MARYLAND
School of Pharmacy
Department of Pharmaceutical Health Services Research
220 Arch St, Baltimore, MD 21201
PI: Susan dosReis, Ph.D.; firstname.lastname@example.org; 410-706-0807
This research study is funded by a contract from the Patient Centered Outcomes Research Institute (ME-1306-01511)