Growing up on medication

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Morning Zen Guest Blogger Lisa Lambert:

Most parents know that the topic of psychotropic medication is charged with emotion.  Everyone from your friends to the anchor on the evening news seems to have not just an opinion, but a judgment.  This month a new book, Dosed: The Medication Generation Grows Up hit the bookstores.  The author, Kaitlin Bell Barnett, argues that American society needs to start listening to the people with the most credibility — the generation who grew up taking these medications.  She says we need “to stop bickering about whether or not kids were 'overmedicated' and should, instead, listen to the people best positioned to comment on the subject – the generation of young adults now in their 20s and 30s who spent their formative years taking the controversial drugs in question.”

For her book, Ms. Barnett interviewed several young people in their 20s and 30s.  She tells their stories and explores some of the issues they face, including the impact of medication on a developing child’s sense of self and the toll taken by medication trials and side effects.  Some felt they had little input into the process of deciding to use medication or weren’t told why they were being given a particular pill.  Some grew up to reject medications while others continued taking them.  There is no single experience and there is no consensus.  However, there is a strong, compelling voice added to the debate whether the benefits of medication outweigh the negatives.

Several of the points made in Dosed reminded me of the 2008 Parent/Professional Advocacy League (PPAL) study on psychotropic medication.  Initially we were only going to survey parents on this topic, but we ended up being able to survey almost 70 youth, and held three youth focus groups.  These young people were 12 to 19 years old, younger than the group interviewed by Ms. Barnett, but some of their worries about side effects and their frustration with unclear information were very similar.  Parents who were surveyed also reported that their insurance was more likely to cover med checks (76%) than therapy visits (53%).  Ms. Barnett also makes this point in her book.  She says that Medicaid and private insurance are “both eager to keep costs down, and therefore preferred relatively cheap psychiatric drugs to long-term talk therapy (despite a growing medical consensus that the most effective treatment for most psychiatric conditions was a combination of medication and therapy).”

For the first time, there are millions of young adults who have taken one or more forms of psychotropic medication during their growing up years.  In the 9 years between 1987 and 1996, the number of youth under 20 taking at least one such drug tripled, going from 2% to 6% — an increase of at least one million children nationwide.  In 2009, 25% of college students were taking psychotropic meds, up from 20% in 2003, 17% in 2000, and just 9% in 1994.

Many parents report that their children vacillate from opposing meds, to reluctantly trying them, to seeing the positives and negatives, and then back again.  Parents, too, often have mixed emotions.  They seldom make the decision to use psychotropic medication for treatment in a neutral, stress-free environment.  They receive conflicting messages not only from their children, but from their extended families, schools and society at large. 

Kaitlin Bell Barnett offers advice to parents, garnered from her own experience and observations. Strong, clear communication is essential, she writes.  Even more essential is taking the time to listen to your child’s feelings and thoughts about medication.  She urges parents to explain why the medications are needed and include children and youth in the decision making process as much as possible.  She counsels parents to listen to their children’s worries and attitudes about medications and to find a therapist who is willing to talk about this topic.  She notes that resisting or rejecting medication is common but parents can mitigate this rejection by having a trusting relationship with their children.

I’ve often said that the most important thing parents of a child with mental health needs can do is nurture and value the relationship they have with their children.  In our PPAL medication study, youth told us that while they like speaking directly to their prescribing doctor, they relied on their parents for information and a better understanding about medication. However, it’s still a highly charged subject. The best thing we can do is to listen to each other.

Note: You can download the book's introduction here.

About the Author: Lisa Lambert is the director of PPAL, a statewide, family-run, grassroots nonprofit organization based in Boston. Lisa grew up in Massachusetts and attended college there.  After college, she moved to San Diego, where she lived for 11 years before returning to Massachusetts.  While she was in San Diego, her two sons were born.  Her oldest son began showing signs of significant mental health needs by first grade and Lisa became an unabashed advocate, first for her own son and later for families like her own. Read her blog here.

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